it’s trisomy 18 day!

Dear friends,

It’s Trisomy 18 Awareness Day!  A day where we focus on T18 — the chromosomal syndrome our sweet baby G had.  We are going to spend the day remembering him, celebrating his life, and spreading awareness about T18 but also infant loss in general.

T18 Awareness Day

via

 

 

Today is one of those days I’ve set apart and made really special in my own heart.  I think the reason it is such a big deal to me is because I feel helpless, I am helpless.  As I learned about this day last year while I was pregnant with our T18 baby, I knew that in the future I would have to take advantage of what this day was set up for and spread awareness — do something.  And I have all of these dreams and big ideas in my head.  Some of them may happen, some may never come to be.  But I want to do something.  As a T18 parent, I have been helpless.  I would have done anything to save my baby’s life.  Any amount of procedures, doctor’s appointments, whatever it took.  But there was nothing that I could, nothing that our doctors could do.  Our Gabriel had Trisomy 18, and his days were numbered just as each of ours are too.  Feeling helpless is a terrible thing.  It’s something that doesn’t sit well with me.  So for over 14 months now, I have been learning to rest in that and rest in God’s powerfulness and not my own.  It’s been a hard lesson and one that I imagine I will continue to learn for a long time.

 

However, within that feeling of helplessness, I believe that God has stirred something in me.  I believe He has been at work for over a year now on my heart.  Seeds were planted a year ago, and they have taken root, taken hold of my heart, and are bursting forth.  And I am busting with excitement to share what all of this means with you!

 

A year ago, while I was still pregnant with Gabriel, Tommy and I knew that we wanted to do something to honor our sweet G.  We weren’t sure how that would look, what form it would take, and when it would happen, but we definitely had the stirring that we needed to do something.  We explored several very different ideas — I mean incredibly different ideas.  But we weren’t ready for it yet and none of the ideas really felt right.  In September, it hit me!  Just like that.  I knew exactly what we needed to do.  So I introduce to you first, dear friends, Project Gabriel.

 

 

Project Gabriel is a support network for women and their families who have experienced miscarriage, perinatal, or infant loss.  Project Gabriel is brand new and just getting started, and I am beyond thrilled to share and have this safe place for women who need some love, support, and encouragement during the most difficult time in their lives.

 

As the first act of Project Gabriel, we will be having a peer support group for women who have lost a baby either through miscarriage, perinatal, or infant loss.  This first meeting will be on April 14th at 6:30 pm with the location to be announced.

 

Project Gabriel

 

This is the passion of my heart, and it is with great joy that I share it with you today.  It’s both terrifying and exciting to share this little secret with the world!  And now, I need your help.  I want to reach as many women as we can.  If you know a mama who needs this support, who could benefit from being around women just like her who know that deep pain of losing a child, would you please let her know about our group?  I know the way for us to make the most impact is to have support from friends and the community.  Thank you friends for how you have supported and loved me over the past 14 months.  Now let’s do it for other women, too!

 

First up, would you head over to Facebook and like our Facebook page?  You can click on like our Facebook page, or find the site at Facebook.com/ProjectGabriel

 

And please share this post with anyone you think could use it.

 

so much love!

 

\\\\today I have the incredible privilege of sharing on one of my very favorite blogs Naptime Diaries  so head over there and check out Jessi’s great blog and incredible heart\\\\

 

Last year’s Trisomy 18 Awareness Day post.

_____________________________

If you are new here, thank you for coming over to read.  If you’re interested in knowing more about our story here are some posts to catch you up quickly:

when we shared that our 2nd baby was very sick

the definite diagnosis of T18

sharing details about baby G in the womb  

when G was born

Click on the Gabriel category to read more about our precious baby.  We celebrated every day with him — the special, the mundane, the hard, and the joyful, and I’ve shared a lot of it here.

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3 thoughts on “it’s trisomy 18 day!

  1. Pingback: thank you. | adventures of jack and me

  2. Pingback: happy monday, last week, + the weekend. | adventures of jack and me

  3. Pingback: summer break and just going with it. | adventures of jack and me

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